T:Eosinophillic Fasciitis	Q:<date> I entered a toxic environment house of a client (a Hoarder's Home) with no protective gear on just trying to be helpful and as a result ended up with this very rare diagnosis.
I have found this website so helpful in symptoms of the horrible <medicine> I am on and thought perhaps there might be others out there who have this medical diagnosis or have even heard of it.
Dizziness,  tooth sensitivity,  blurred vision,  dry eyes,  dry mouth,  shakiness, horrible headaches in addition to the medical condition symptoms of swelling,  pain,  itchiness,  hardened tissue,  loss of range of motion,  stiffness,  tightness like a blood pressure cuff on it's last squeeze!
Treatment started in <date> with <num>mg of <medicine> and Physical Therapy <num> times a week,  compression stockings and compression sleeves to assist the <medicine> and Physical therapy to keep the swelling at bay.
<professional_practitioner> are awesome and also do lymphatic massage.
<date> was the last taper from <num>mg to <num>mg and it apparently was too fast in that all the symptoms came back again so now am back on <num>mg tapered to <num>.
<num>mg and on <date> to <num>mg.
Every blogI have read has people who have had this medical condition for <time_period> and have had contractures etc that are fiercely depressing.
I am supposed to be treated for <time_period> and this is supposed to be gone.
Am hoping there may be others out there who are on this site possibly like me or at least who have this condition that are not a permanent disability!
A:<name>,  Welcome To Healing Well!
I am not familar with Eosinophillic Fasciitis,  so I used google.
From the sounds of it,  but do please correct me if I am wrong,  it is an autoimmune disease that causes inflammation.
Treatment happens to be chemotherapic agent medications (autoimmune suppressants) from what I see too.
I don't have this particular problem,  however,  I have necrotizing gramultous inflammation pseudotumor and Wegener's Disease.
When I first got sick,  I was treated agressive.
I was on long-term high dosages of <medicine>,  given radiation and put on chemotherapy agent medications.
I surely understand your frustration and why it gets depressing.
I had and still do have so many mixed emotions about it.
The <medicine> was extremely hard on my body,  as it is a medication that should not be used long term actually.
I went from <num> lbs to <num> lbs,  developed purple strea (sp),  hot flashes,  moon face,  muscle cramps,  muscle spasms,  glucose readings (bloodsugars,  as I am diabetic) went haywire including having to be put on <medicine>,  extreme fatigue.
The bright side is when I got off <medicine> all those side effects went away,  and I went from the <num> lbs to <num> lbs.
From reading on medicine cabinet,  it looks like the treatment is extremely similar to mine.
Right now I am being treated with <medicine> Injections,  <medicine>,  <medicine>,  <medicine>,  <medicine>,  <medicine>.
I feel like I could open a pharmacy with all the crap I have to take!
Has the <professional_practitioner> suggested radiation to help shrink the inflammation?
You can get only so much radiation in your body,  so they use a term called life-time.
My location is behind my left eye.
They gave me life time radiation of left eye.
It just means I can't radiate more on my eye.
I do not know if it will help you,  but it helped me a lot.
Do you go to a specialist?
I am very interested in hearing about this disease you have.
If you don't have a specialist,  I always suggest teaching <institution>.
For example,  I go to <institution>.
I have found teaching <institution> have more specialists,  newer medical equipment,  newer testing,  state of art medical training,  the current medical training,  and if you can't pay for it the <institution> usually writes it off if you can't even do a payment arrangement.
I signed a waiver for my doctor stating he can bring in interns,  other <professional_practitioner>,  visiting <professional_practitioner>,  out of country <professional_practitioner> and so on.
I decided because I am <num> of <num> people to get this problem if I could at least help one patient to not be the guinea pig I am,  it is worth it.
The <professional_practitioner> will know how to treat it then.
