
T:Terminal restlessness	Q:I don't know if anyone has heard of this before or not,  but I posted about this a while back,  but I didn't know what it was called. No one at the <institution> had ever heard of this. <institution> told me about it. about a <time_period> before Daddy died,  he could not be still. It was like he was driven to move. He couldn't be still. And he started hollering day and night at the top of his lungs. Well they did all kind of tests and couldn't find anything wrong with him . The <institution> got tired of him hollering and they told me that he needed to go to the <institution> to get his medicines adjusted. They said that his alzheimers was getting worse. I didn't know any better so I sent him up there. He never got any better. He had just about stopped eating at the <institution>. When he got to the <institution>,  he quit eatting and they had to keep giving him IV fluids. I talked to his regular <professional_practitioner> and he told me that Daddy was dying. The <institution> still didn't want to release him. They said that nothing was wrong with him. I think they just wanted to keep getting money. I made them release him after <time_period>. Any way when I researched caring for the dying on the internet,  the terminal restlessness popped up and that was exactly what Daddy was experienceing. He had started to die when he developed the terminal restlessness and I didn't know it. My point is: <institution> deal with death everyday. Why didn't they know about this? I asked <num> of Daddy's <professional_practitioner> today if they have ever heard of this and they said no. If I had known,  I would have brought my Daddy home then,  instead on making him go to the <institution>. They made me and my sister feel so bad because Daddy was hollering and couldn't be still. They implied that he could stop if he wanted to because there was no physical reason for him to be hollering. Anyway,  I wanted to put this out there so nobody else would have to go through what my family did. I feel cheated out of the <time_period> that he was at that <institution>. If your loved one starts hollering and can't be still ,  they can't help it and there is a name for it.  	A:Thanks for sharingin my <time_period> as a <professional_practitioner> i have seen this a couple of times so yes i do know it existsSome just are not fully educated about geriatrics and ADAgain i am so sorry for your lossblessings <name>


A:Thank you for sharing this in your time of grief. <name>


A:<institution> personnel seem to be well-versed on this subject,  but I had never heard the term until last night. For <time_period> now my mom has been up and down,  sleeping very little,  but not knowing what she wants to do. A <institution> <professional_practitioner> came and sat with her so that we could get some sleep but it has continued this morning. Medication seems to help very little at this point. Our <professional_practitioner> does not seem to think Mom is quite at the official terminal restlessness stage yet,  but I cannot imagine it getting worse. No hallucinations so far. this is a very sad thing to watch someone go through,  and it is very debilitating on the entire family. I am so sorry for your loss! 


A:My condolences of your loss. Thank you for sharing. Because I refuse to let loved ones go into a <institution>,  I bend over backwards. I live with my grandmother who has dementia taking are of her while I fight chemotherapy. I don't know how I do it,  but it is surely the Grace of God. I used to work in a <institution>,  I saw too much behind seens in there,  and I refuse to put people in until I utterly kill myself trying to do it. I am so far handling it.  


A:Not all <institution>s are badyou really ned to check out the reports filed. incident reports . neglect ect . prior to putting loved one in homesi too worked for yrs in my own <institution>/ <institution> n everyone was treated with dignity . respect n cared for by my staffwhen mom got bad i looked after her at homedad as welli did not want others looking after them as i felt it was only proper to do it myselfi did hv help from Red Cross. i was able to hv time away which is important imhojust my thoughts <name>
